I can’t run away from the very real fear
That I’m just dying
And this is the end of my life
It feels like it
My body doesn’t do what it used to
These past few weeks I’ve barely been conscious
I ask
Is this life?
Or is it death in slow motion?
And my fear
It grips me
I suggest at least three shocks of existential terror a day
And I breathe through it
But at the back of my mind I wonder how many breaths I have left
And I’m all alone besides my helpless animals who couldn’t do anything if something went wrong
Sometimes waking up in the morning feels like a miracle
I get bizarre symptoms
Like the other night I’d get these waves of pressure in my head and then I’d feel really woozy
And then you play do I go to the hospital or is this just another thing
And I want to know if I’m okay but it’s so obvious I’m not and I don’t know how to fix it
I’m terrified and alone
There’s no one who sees those moments and tells me I’m okay
I claw myself out of them
Afraid of drowning in the dread
And people look at me like I’m a hypochondriac
My question is do regular people get pressure building in their head that becomes dizziness/confusion/uncomfortable feelings?
All this other stuff I experience
Is this all normal?
Profound exhaustion
I feel like I haven’t slept in days
Yet I go to bed
That nap I took from 10 to 12:30 was the best sleep I’ve had in weeks and it wasn’t enough
Why is nothing ever enough?
How to quell the fear?
I’m so terrified that I’m slipping away
And it feels like no matter how much fight I put out this disease has the upper hand
In so many areas of my life I’m putting in my all and getting back nothing
There comes a point where when you hear the words “hard work” you just see red
Because everyone is assuming the reason you don’t get much out of life is that you’re not working hard enough
I’m being swallowed alive by this disease
How do I make my brain sleep?
28 events an hour of my brain just waking up
I could sleep forever and never feel awake again
And I’m afraid
Because I need to be capable of working the minimum that I do
And I need to be able to handle things on my own without assistance
And like 60% of the year I can’t
I wish I could transform into a well me
But the well is always a well
That’s not me
Wouldn’t it be lovely to be awake?
The last time I felt awake I was psychotic
Maybe well is something saved for a me who can’t feel anything but insanity
Is there a place for Sleeping Beauty on this planet?
Eh,
Nix the beauty
I just need sleep
It’s been so far away from me
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